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A community of cancer survivors supporting each other.

2013, I'm still alive.

Happy New Year to all! I backed-off from posting for a while. The lump I had on the roof of my mouth turned out to benign, yet my ENT decided to remove it all. I will not tolerate lumps in my mouth LOL! Seriously that was a relief and the first little 'gulp scare' that i've had. It's now a new year! I'm still breathing. I'm still enjoying life. And still the cancer shadow follows me wherever I go, every minute of the day. What i mean by that, is that not a minute goes by when i am not aware that i have/had cancer and the radiation treatment. I am blessed. Right now i have the flu, and it really sucks cause my nose is all stuffy. So i have to breathe with my mouth open. Which means that the little saliva that i have, is not able to compete with an open mouth all night long :) So my tongue, my gums an whole mouth feel totally dried up. And i wake up to re-hydrate my mouth. Kinda funny, not a big deal. I pray for all who are still struggling and will gladly offer advice or share my experience with new arrivals to our special privileged club, Regarding long time BFC friends, I still have not heard from Elena Rose Graves. I am concerned, and pray that she will be fine. Get cancer to come back three times is no fun. Love to all and thank you again to Jill who has made this incredible community possible. Jacques Nemo Me Impune Lacessit “You never know how strong you are until being strong is the only is the only choice you have.”
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Nice to see you back and with a benign mouth lump. Welcome...
 Hi Pat, Thanks for writing. I do have to admit that the lump was one of those, moments where you wonder and remember that first time your heard the big C. Stay well bud! Jacques
 Hi Pat, Thanks for writing. I do have to admit that the lump was one of those, moments where you wonder and remember that first time your heard the big C. Stay well bud! Jacques
I think we fixed that problem that you just had. and it looks like your blog post posted. Let me know if you see anything else. Happy New Year! Thanks for the update!! xoxoxo, Jill
Hi Jacques! I am so thrilled to see your post! Benign--is there a more welcome word to a cancer survivor? I think not! I am so glad that is the word you got and I hope you've had your last scare. I'm sorry you are dealing with some treatment-related issues, but it sounds like you are rolling with the punches, which is what we have to do. What a shame that the flu-bug has bitten you--I have been down and out all week with a cold and also some intestinal kind of bug. Hey, we are getting all of our illnesses out of the way at the beginning of the year so we can be free and clear from here on! Take care, my dear friend, and keep enjoying NED! Hugs-- Martha
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HI Martha, Great to hear from you as well!!! You know the thing i hate the most about the flu, is really the wasted time. Sniffles, soar throat, fever, are a piece of cake, but the time sitting in bed, that to me is wasted precious time!! :))
I totally agree! I was all set to begin the new year by training for another marathon or half-marathon (depending on how the old bod was holding up), but that is all on hold now while I lay around, blow my nose and eat chicken soup all day! :( 
Hi !!! Great news!!! I'm very happy for you! Btw Elana has a recent pic on Facebook. She looks well:) so glad you finally blogged. I admit, I was worried about you!!! Hugs, Karen
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 Hi Karen, I am so pleased that she resurfaced. Thank you too for your concern. I try to reserve this wonderful blog to relevant experiences and not turn it in to some Facebook, you know :) Hugs to you too!, and looking forward to this coming year of life! Jacques
It's good to hear from you and that all is well except for the flu!! I am glad for benign. I like your quate. It is ture. When asked how I got through radiation and chemo, I'd to say "You do what you gotta do!"
 HI Sandijo, great to hear from you. Yup, that;s one thing i've learned is to suck it up. I used to be squeamish about injections. LOL!, Now it's whatever. I had recently two largengoscopies, where they stick a long tube with a camera up my nostrils all the way back to my throat. The first one had years ago, i freaked. This time, it was no big deal at all. Told the dock just go for it. Indeed i think we've all built up a much great tolerance for pain after that cancer boot camp :)
Glad to hear you're doing well. Hope you're soon over your flu. Mari
Hi Jacques... Its good to hear all is well with you... I know what you mean about your mouth being dry. Mine is to. I have forced hot air heat and its terrible how it drys my mouth out. I have 2 humidifiers in my room and I am thinking about getting another one. I keep water close to so I can use it if I wake up. I am using biotene before I go to sleep. I am blessed to:) I like that saying you have there, you really don't know how strong you are till being strong is the only choice. Man I know that! Love and hugs to you:) Sabina:)
Glad to hear the lump was benign!!! I travel this insane tonsil cancer a few months after you and also happy to be cancer free. I have a question for you. Do you have any side effects due to the radiation? I am having some issues with radiation fibrosis. Intense charlie horse pain on my neck and jaw. In two weeks I will be traveling to Sloan Kettering Cancer center in New York. The have a specialist that will be assessing my problem. Just curious if you were having any issues in the neck and jaw.
 Hi Tobias, interesting question. I don't know if you had a radical neck dissection, along with a nice long scar from your ear to your throat? I had that surgery. My neck still feels tight along the scar and sometimes it does cramp up and is painful. I try to do stretching exercises and turn my head in both directions to pull on the scar as often it feels tight. Also after the surgery, once the scar healed, i rubbed my scar with a semi abrasive loofa to try and stimulate the nerve endings as half my face was numb. Most of the sensation came back but it is tight and occasionally will cramp up on me. On a pain scale i'd say it's a 2 out of 10. Best of luck to you in NYC. At sloan, the certainly know their stuff!
So glad to hear that you are doing so well (except for the flu, obviously!). I so hear you about always being fully aware that I am / have been a cancer patient. I try to make sure that I dont dwell on it, and keep it in the right perspective. I am a wife, a sister, a huge sports fan, and a cancer patient. In other words, its another life experience that has made me what I am. Of course, I'm not telling tales out of school if I admit that sometimes that's much easier said than done. ;) Happy New Year to you and yours, and wishing you continued good health!
 I so hear you as well! I don't dwell on it, but it's a hell of a life experience that never lets you forget. I've often said that in someways it was a blessing. It was a transformative that slapped me hard across the face and made me into a better, stronger kinder person. Happy New year to you as well. This will be a big year for you as you climb up the ladder to a stronger you. God bless! Jacques
Still alive is the best, Jacques. Best wishes for a healthy 2013.
Happy New Year, Brother! Good to hear you are well Mac
 Good to hear from you as wel bto... I'm scoutin' out for some new ink for my right shoulde:) Hope you are enjoying life and great to hear from you! Jacques
Jacques, thanks for the update. I have been thinking about you alot. Glad to hear the lump was benign! I'll chalk that up to yet another prayer answered! God bless you Jacques! I am sorry to hear about you having the flu. Have you tried Biotene? It helped me greatly during treatment with dry mouth. I still use it daily. Take care, brother. Scottie
So great to hear from you and know you are doing well, Jacques. I understand when you say the cancer shadow follows you. It has followed me for 19 years. I can live with that just as long as it doesn't catch up with me again ... LOL. I did have a skin cancer on my right wrist recently but hopefully nothing will come from that. I am here, also, if I can share any of my experiences with the new members or can be of any help in any way to any of you. All of you are ALWAYS IN MY DAILY PRAYERS. Love Jill for bringing us all together. Love, hugs, prayers and blessings going your way. Joyce In NC
Glad to hear your doctor was proactive so you don't have to worry about the darned lump. Glad too, you are . . sniff . . . on the mend. :>
Hi Jacques, Long time no blog....lol...how r u feeling? I hope all is well. OMG I was nervous while reading ur Lump blog n then Happy to c it was nothing. Ughh no1 wants to encounter the C again. Ok my friend...stay clean..lol n My plans as well. God Bless :)
Thanks Elena :) I'm feeling great. I think we are all blessed. 5 years NED, is something so many of us would dream of having. 5 years NED also keeps me humble as there have been a lot of friends here on this blog that we have all said goodbye to. God bless! :) Jacques
Thanks Elena :) I'm feeling great. I think we are all blessed. 5 years NED, is something so many of us would dream of having. 5 years NED also keeps me humble as there have been a lot of friends here on this blog that we have all said goodbye to. God bless! :) Jacques
Nice to hear from ya. Glad ur doing well. Yes we are very fortunate and there isnt a day that goes by that I am not thankful for that. It sadens me when I say Goodbye on here. I found myself so sad at that. No1 deserves to lose this battle. Its not fair. I pray for a cure..In Jesus Name AMEN!!
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What a wonderful quote!! RE: Elena Rose Graves. I THINK she posted recently. I have to check. I hope this finds you well. XOXO, Carol
Happy Birthday...June 2013. I know it is late, but maybe you can suck on a whole clove if you have a sore throat. Don't bite into it. Carry some on a container or foil for when out. I swear by Airborne or Zicam (or generic) and take at first sign of cold or flu. I like zicam best..but airborne worked day one when I could not find my Zicam. ok I'm not telling the whole truth...I bought two half gallons of ice cream too (he he he). Phew, glad your lump was benign. I don't get on here much. That is good because I don't focus on the disease. I do research every so often to see what the latest status is...especially for recurrence. I celebrate brithdays in a BIG way...traveling, or doing some fun event. I've never celebrated a cancerversity as some do. Heck..I pretty much celebrate every day. Stay well buddy.
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I see you have a birthday tomorrow Jacques. I hope you are well or I should say better, and that you have a wonderful day to celebrate your birthday.
Hi Louise, THank you so much Louise!. Yes tomorrow is another notch.:) Hard to believe it's been 5 years. I've been blessed with time and a new appreciation for the precious time God gives us.I am a very different person after this transformative battle :) God bless, Jacques
Happy Birthday Jacques! hugs and love Sabina
♫ Happy Birthday to you ♫ ♫ Happy Birthday to you ♫ ♫ Happy Birthday dear Jacques ♫ ♫ Happy Birthday to you ♫ ♫ I hope you had a beautiful and blessed day ♫ ♫ Love and Hugs ♫ ♫ Joyce In NC ♫
Happy Birthday Jacques! Wishing you a lifetime of continued good health and happiness!
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Thanks CJ, I'll gladly accept your good wishes. 5 years ago I didn't know I'd make it this far. I've been blessed in so many ways. The gift of time is the most precious as it is given to us without instructions. With God's guidance we can recalibrate our values and use our limited time wisely :) Hugs, Jacques
Thanks CJ, I'll gladly accept your good wishes. 5 years ago I didn't know I'd make it this far. I've been blessed in so many ways. The gift of time is the most precious as it is given to us without instructions. With God's guidance we can recalibrate our values and use our limited time wisely :) Hugs, Jacques
Thanks CJ, I'll gladly accept your good wishes. 5 years ago I didn't know I'd make it this far. I've been blessed in so many ways. The gift of time is the most precious as it is given to us without instructions. With God's guidance we can recalibrate our values and use our limited time wisely :) Hugs, Jacques
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Vital Info

Posts

March 23, 2008

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aim:jacques9990

Hampton Bays, New York 11946

June 11, 1959

Cancer Fighter

Cancer Info

Throat Cancer

Metastatic Squamous Cell Carcinoma with Occult Primary.

February 8, 2008

5.1 - 6.0 cm

Yes

Lymph nodes on neck.

Stony Brook University Hospital. Department of Radiology

You never know how strong you are, until strong is the only choice you have left.

June 4, 2008

Swollen lymph node on the right side of my neck. Post surgery, official classification TX, N2b, M0

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